Woodman, P, Jones, F, Riazi, A and Mackenzie, A (2012) Social participation post stroke: a meta-ethnographic review of the experiences and views of community dwelling stroke survivors in the UK. In: UK Stroke Forum Conference; 04 - 06 Dec 2012, Harrogate, U.K.. (Unpublished)

Abstract

Introduction: Research suggests participation is an important construct and a valued goal to stroke survivors. But there is currently no consensus on a definition of participation that reflects experiences and challenges of people with stroke. This systematic review aimed to identify, appraise and synthesise qualitative research on stroke survivors’ views of their experiences of social participation. Method: Ten electronic databases were searched for relevant qualitative studies in English from January 2001 and ending September 2011. Searching for grey literature, hand searching journals, checking references from retrieved studies and contacting known experts was conducted. Qualitative studies were included if they reported the perspectives of UK stroke survivors on participation in a social context. Two independent reviewers extracted data and assessed methodological study quality. A meta-ethnographic approach described by Noblit and Hare (1988) was used to synthesise findings. Results: Searches identified 11976 citations. 11 articles met the inclusion criteria. Five main themes were identified: (1) Change and disruption; (2) Barriers to participation; (3) Acceptance and adapting behaviour; (4) Building self efficacy beliefs to participate and (5) Personal meaning of participation. A conceptual model was developed highlighting the complexity and multi-faceted nature of participation post stroke. Conclusion: This qualitative synthesis suggests that stroke survivors reestablish continuity and meaning in their lives post stroke by building their self efficacy beliefs to overcome various problems. The ability of the stroke survivor to accept and adapt to situations by changing their behaviour could be seen as one central factor to social participation post stroke.

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