Disorder and disconnection : parent experiences of liminality when caring for their dying child

Jordan, Joanne, Price, Jayne and Prior, Lindsay (2015) Disorder and disconnection : parent experiences of liminality when caring for their dying child. Sociology of Health & Illness, 37(6), pp. 839-855. ISSN (print) 0141-9889

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Abstract

Parents caring for a child with a life threatening or life limiting illness experience a protracted and largely unknown journey, as they and their child oscillate somewhere between life and death. Using an interpretive qualitative approach, interviews were conducted with parents (n = 25) of children who had died. Findings reveal parents' experiences to be characterised by personal disorder and transformation as well as social marginalisation and disconnection. As such they confirm the validity of understanding these experiences as, fundamentally, one of liminality, in terms of both individual and collective response. In dissecting two inter-related dimensions of liminality, an underlying tension between how transition is subjectively experienced and how it is socially regulated is exposed. In particular, a structural failure to recognise the chronic nature of felt liminality can impede parents' effective transition.

Item Type: Article
Research Area: Nursing and midwifery
Faculty, School or Research Centre: Faculty of Health, Social Care and Education
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Depositing User: Automatic Import Agent
Date Deposited: 08 Sep 2015 15:29
Last Modified: 30 Jul 2017 02:09
URI: http://eprints.kingston.ac.uk/id/eprint/32231

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