Impact of congenital heart disease on siblings : a review

Parker, Roses, Houghton, Sarah, Bichard, Elizabeth and Mckeever, Stephen (2020) Impact of congenital heart disease on siblings : a review. Journal of Child Health Care, 24(2), pp. 297-316. ISSN (print) 1367-4935

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Abstract

Congenital heart disease (CHD) is the most common birth defect. Little is known of the impact of having a sibling with CHD. Available literature documents negative impact of having a sibling with other chronic conditions. This literature review considers empirical evidence investigating the impact of having a sibling with CHD. Twelve databases were searched, and 202 articles retrieved. Eleven articles met the inclusion criteria and were subject to data extraction, quality appraisal, and narrative synthesis. Three themes emerged: changes in normal life, impact on siblings, and factors affecting the extent of impact on siblings. Only one intervention study was identified, 5 of 10 studies were conducted over 20 years ago, and only 4 studies included children as participants. Evidence suggests siblings of children with CHD experience adverse life changes which lead to negative impacts in several domains. Evidence is inconclusive regarding mitigating factors of these impacts. Further research is needed to understand the experiences of being a sibling of a child with CHD.

Item Type: Article
Research Area: Cardiovascular medicine
Nursing and midwifery
Faculty, School or Research Centre: Faculty of Health, Social Care and Education
Faculty of Health, Social Care and Education > School of Education
Depositing User: Stephen Mckeever
Date Deposited: 24 Apr 2020 13:53
Last Modified: 14 May 2020 08:47
DOI: https://doi.org/10.1177/1367493520914738
URI: http://eprints.kingston.ac.uk/id/eprint/45044

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