Living with incontinence : the experience of people with dementia

Cole, Laura and Drennan, Vari (2019) Living with incontinence : the experience of people with dementia. Dementia, 18(5), pp. 1826-1839. ISSN (print) 1471-3012

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Dementia is a distressing condition in which individuals progressively require the support of others. Many people experience problems with incontinence and continence management. The presence of incontinence is influential in decisions for people with dementia to move into a care home. This study, in the interpretative tradition, investigates for the first time the person with dementia's perspective on these problems and their strategies for managing them. We conducted semi-structured conversational interviews with seven people with mild-to-moderate dementia and analysed the transcripts thematically. Our participants described both a variety of problems with incontinence and continence management, and their embarrassment and humiliation. Strategies included managing their presentation of self to others to keep such problems hidden, although it was evident that for some their cognitive problems led to strategies that were potentially problematic for others. In addition, some described the ways in which they acted to protect others, such as spouses, from the stigmatising effect of the incontinence.

Item Type: Article
Additional Information: This work was supported by the National Institute for Health Research (NIHR) under its Programme Grants for Applied Research scheme (RP-PG-0606-1005).
Research Area: Allied health professions and studies
Nursing and midwifery
Faculty, School or Research Centre: Faculty of Health, Social Care and Education (until 2017)
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Depositing User: Katrina Clifford
Date Deposited: 21 Sep 2017 14:01
Last Modified: 21 Aug 2019 10:14

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