Whose voices? Patient and public involvement in clinical commissioning

O'Shea, Alison, Chambers, Mary and Boaz, Annette (2017) Whose voices? Patient and public involvement in clinical commissioning. Health Expectations, 20(3), pp. 484-494. ISSN (print) 1369-6513

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AIM: This paper aims to explore patient and public representation in a NHS clinical commissioning group and how this is experienced by staff and lay members involved. BACKGROUND: Patient and public involvement is believed to foster greater public representativeness in the development and delivery of health care services. However, there is widespread debate about what representation is or what it should be. Questions arise about the different constructions of representation and the representativeness of patients and the public in decision-making structures and processes. DESIGN: Ethnographic, two-phase study involving twenty-four observations across two types of clinical commissioning group meetings with patient and public involvement, fourteen follow-up interviews with NHS staff and lay members, and a focus group with five lay members. RESULTS: Perceptions of what constitutes legitimate representativeness varied between respondents, ranging from representing an individual patient experience to reaching large numbers of people. Consistent with previous studies, there was a lack of clarity about the role of lay members in the work of the clinical commissioning group. CONCLUSIONS: Unlike previous studies, it was lay members, not staff, who raised concerns about their representativeness and legitimacy. Although the clinical commissioning group provides resources to support patient and public involvement, there continues to be a lack of clarity about roles and scope for impact. Lay members are still some way from constituting a powerful voice at the table.

Item Type: Article
Additional Information: The research was supported by the National Institute for Health Research (NIHR) Collaboration for Leadership in Applied Health Research and Care (CLAHRC) (award no.: NIHR, CLAHRC-2013-10022) South London, at King’s College Hospital NHS Foundation Trust, and the Faculty of Health, Social Care and Education, St George’s, University of London & Kingston University
Research Area: Allied health professions and studies
Faculty, School or Research Centre: Faculty of Health, Social Care and Education (until 2017)
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Depositing User: Automatic Import Agent
Date Deposited: 06 Jul 2016 09:02
Last Modified: 19 Jun 2017 09:20
DOI: https://doi.org/10.1111/hex.12475
URI: http://eprints.kingston.ac.uk/id/eprint/35401

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