What patients do and their impact on implementation: an ethnographic study of participatory quality improvement projects in English acute hospitals

Boaz, Annette, Robert, Glenn, Locock, Louise, Sturmey, Gordon, Gager, Melanie, Vougioukalou, Sonia, Ziebland, Sue and Fielden, Jonathan (2016) What patients do and their impact on implementation: an ethnographic study of participatory quality improvement projects in English acute hospitals. Journal of Health Organization and Management, 30(2), pp. 258-278. ISSN (print) 1477-7266

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Purpose - The potential for including patients in implementation processes has received limited attention in the literature. The purpose of this paper is to explore the different roles adopted by 63 patients that emerged during and after four participatory quality improvement interventions, and the nature of their impact upon implementation processes and outcomes. Design/methodology/approach - A cross-case ethnographic comparison of Experience-based Co-design in two clinical pathways in two UK NHS Trusts. Findings - Two key themes emerge from the data. First, the authors found a range of different roles adopted by patients within and across the four projects; some were happy to share their experiences, others also helped to identify improvement priorities alongside staff whilst others were also involved in developing potential solutions with the staff who had cared for them. A few participants also helped implement those solutions and became "experts by experience" through engaging in the whole co-design process. Second, in terms of the impact of patient engagement with the co-design process whilst the changes championed by patients and carers were often small scale, as co-designers patients provided innovative ideas and solutions. Through their involvement and contributions they also acted as catalysts for broader change in the attitudes of staff by providing a motivation for wider organisational and attitudinal changes. Research limitations/implications - The research was conducted in two clinical pathways in two NHS trusts. However, the findings complement and add to the growing body of knowledge on experience based co-design. Practical implications - Patient engagement is likely to require support and facilitation to ensure that patients can play a meaningful role as partners and co-designers in service improvement and implementation. Different roles suited particular individuals, with participants stepping in and out of the co-design process at various stages as suited their needs, capacities and (albeit sometimes perceptions re) skills. In this context, facilitation needs to be sensitive to individual needs and flexible to support involvement. Social implications - Patients and carers can play active roles in service improvement, particularly where the approach facilitate active engagement as co-designers. Originality/value - Analysis of the role patients and carers in implementation and improvement.

Item Type: Article
Additional Information: This work was supported by the UK National Institute for Health Research Health Services and Delivery Research Programme (project number 10/1009/14) and the NIHR Oxford Biomedical Research Centre. This article is (c) Emerald Group Publishing and permission has been granted for this version to appear here http://eprints.kingston.ac.uk . Emerald does not grant permission for this article to be further copied/distributed or hosted elsewhere without the express permission from Emerald Group Publishing Limited.
Research Area: Allied health professions and studies
Nursing and midwifery
Faculty, School or Research Centre: Faculty of Health, Social Care and Education (until 2017)
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Depositing User: Katrina Clifford
Date Deposited: 24 Sep 2015 10:41
Last Modified: 12 Oct 2017 15:43
DOI: https://doi.org/10.1108/JHOM-02-2015-0027
URI: http://eprints.kingston.ac.uk/id/eprint/32291

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